Facing the future of rare together
Celebrate Rare Disease Day with leaders committed to brighter futures for those living with rare disease
Thursday, February 27th • 6PM–8PM
Burnham Café, 5th Floor
10 Summer Street, Boston
Learn more, make connections, and hear from the innovators who are shaping the way we will see, think, and feel about rare diseases in the next decade.
Keynote Speaker: Wendy White
Chairman of the Board • Global Genes
Co-Founder • Rareiti, Inc.
talks about "Facing
future of rare together"
Wendy White is an innovative leader working for over 20 years in rare disease at the intersection of advocacy, technology, and business. She is the mother of a child with a rare disorder and publisher and co-author of Uncommon Challenges; Shared Journeys—Stories of Love, Hope, and Community by Rare Disease Caregivers.
See: Patricia Weltin
CEO/Founder • Beyond the Diagnosis
Beyond the Diagnosis is an ambitious art project that bridges the gap between patient and researcher and raises awareness of rare diseases within the medical community. The exhibit currently houses over 100 portraits showing the rich, vibrant lives of children with rare conditions.
Think: Stephen Costalas
CEO • HVH Precision Analytics
With widespread roots in healthcare, HVH leverages predictive analytics driven by an evidence-backed, machine-learning platform to explore new insights, make greater connections, and uncover new patients.
Feel: Stephanie Brown
SVP, Head Rare Disease, North America • Ipsen
Ipsen takes a patient-focused approach to improving the lives of people affected by rare disorders and develops high-quality, innovative treatments that address unmet needs. They strive to support patients with drugs, services, and solutions across the entire continuum of care.
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Join H4B Boston and our innovative guests in
H4B Boston is a part of Havas Health & YOU, the largest health and wellness communications network in the world. Havas Health & You has 4,000+ dedicated health experts in more than 150 offices, 100 cities, and 70 countries. H4B Boston is our specialty agency committed to creating meaningful connections in the rare disease community — and always grounded in the mission of human purpose.