H4B Boston

Facing the future of rare together

Thursday, February 27th • 6PM–8PM
Burnham Café, 5th Floor
10 Summer Street, Boston

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Learn more, make connections, and hear from the innovators who are shaping the way we will see, think, and feel about rare diseases in the next decade.

Wendy White. Chairman of the board Global Genes. Co-founder Rareiti, Inc. Parent and caregiver of rare disease.

Keynote Speaker: Wendy White

Chairman of the Board • Global Genes
Co-Founder • Rareiti, Inc.
talks about "Facing the future of rare together"

Wendy White Wendy White is an innovative leader working for over 20 years in rare disease at the intersection of advocacy, technology, and business. She is the mother of a child with a rare disorder and publisher and co-author of Uncommon Challenges; Shared Journeys—Stories of Love, Hope, and Community by Rare Disease Caregivers.

Patricia Weltin CEO Founder Beyond the Diagnosis
Patricia Weltin CEO Founder Beyond the Diagnosis

See: Patricia Weltin

CEO/Founder • Beyond the Diagnosis

Beyond the Diagnosis is an ambitious art project that bridges the gap between patient and researcher and raises awareness of rare diseases within the medical community. The exhibit currently houses over 100 portraits showing the rich, vibrant lives of children with rare conditions.


Stephen Costalas CEO HVH predictive healthcare analytics
Stephen Costalas CEO HVH predictive healthcare analytics

Think: Stephen Costalas

CEO • HVH Precision Analytics

With widespread roots in healthcare, HVH leverages predictive analytics driven by an evidence-backed, machine-learning platform to explore new insights, make greater connections, and uncover new patients.


Stephanie Brown SVP, Heap Rare Disease, North America
Stephanie Brown SVP, Heap Rare Disease, North America

Feel: Stephanie Brown

SVP, Head Rare Disease, North America • Ipsen

Ipsen takes a patient-focused approach to improving the lives of people affected by rare disorders and develops high-quality, innovative treatments that address unmet needs. They strive to support patients with drugs, services, and solutions across the entire continuum of care.

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